ButterflyKisses was created to raise awareness about Gastroschisis,it's increasing occurence, and to raise money for the research of Gastroschisis. Gastroschisis is a defect that occurs when the abdominal wall fails to close properly during fetal development, allowing the intestines to protrude through the abdominal wall. Gastroschisisis usually discovered when the mother's alpha feto protein (AFP) blood levels become elevated during the second trimester. The problem may also be detected during a routine fetal ultrasound. Gastroschisis occurs in approximately 1 in 2,500 births. It does not appear to run in families, and there is no increased risk of recurrence in future pregnancies. Unfortunately, we do not know the exact cause of gastroschisis. However, it is often associated with younger mothers (under 20 years of age) and is unrelated to anything the mother ate or did before or during her pregnancy. Gastroschisis usually occurs as an isolated defect and is not typically seen in conjunction with other health problems. During the third trimester, the baby is at risk for gastroschisis-related complications such as bowel dilatation (stretching), decreased fetal growth rate, oligohydramnios (low volume of amniotic fluid, indicating reduced fetal kidney function), and, in only very rare cases, death. Mothers and babies are closely monitored with ultrasound and fetal non-stress testing. ( Information care of C.H.O.P.)
Fortunately, most babies with gastroschisis do not have severe damage to the intestine before birth. The relatively normal intestine can be returned to the abdomen and the defect closed in one or two surgical operations shortly after birth. These babies will still be in the intensive care nursery for several weeks before the intestines work well enough to allow feeding and subsequent discharge home. However, these babies eventually feed and grow up normally. But that isn’t always the case. There are babies and small children, who simply do not make it. Some whose complicated case, cannot be solved and will ultimately lead to death. My daughter, Kaylee, was 6 months and 11 days old when she passed away. We honestly just thought, everything was going to be okay, that one day she would soon be home, and it would all be a distant memory. We put so much faith in the Doctors and Surgeons, but sometimes they don’t know as much as we think they do. The fact of the matter is that you or someone you know, knows someone who had gastroschisis. It’s more common than you think and we have to find better ways to treat this birth defect! Please help us raise money for Gastroschisis Research!
All proceeds from Butterfly Kisses will be donated to the Johns Hopkins Children's Center for the research, treatment and education of Gastro-schisis. Some funds will also be donated directly to the Children's Center for use at the their sole discretion. Any money that you would like to donate is 100% tax deductible. Please request a receipt of payment at your time of donation. Thanks! Annette Hewins- Kaylee4kids@aol.com